Genetic Rattle, 2022
Vintage Pyrex Baster, Plastic Mini Baby Figures
12” x 3.5”
Six months after my husband and I married in an abrupt ceremony in 1998. We were back in the US from Germany, where my husband's family was. He was in the US Army, and we were 'home' for Christmas. One evening, his father sat us down in the kitchen and explained to us that my husband's mother had Huntington's Disease. The reason for telling us this, then, they thought I could be pregnant - why else would we have done something so foolish?
I will probably never get over the fear in my husbands eyes that night as he left the room, leaving me standing there confused, lost and scared. I had never heard of Huntington's Disease. I did not know it was an incurable brain disease, it was fatal and that people who have the mutation have a significantly reduced life span with their quality of life rapidly declining often starting in the prime of their lives. Any child born to someone with the HD mutation, as my husband was, has a 50/50 chance of inheriting it, and so would any children they had (if they had the gene).
Several years later we would be sitting in a waiting room watching the clock tick as we waited for the result of his genetic fate. Distractedly I looked at magazines and the images on the wall, all I could see were babies and happy smiling families. When we were called into the office, we sat down directly from a large window, staring out onto a sunny beautiful day full of light. Looking at both of us, the Dr opened the envelope and asked my husband "Do you really want to know?". My world went black. My husband vowed that we were never having children, he had the gene that causes Huntington's Disease.
(Food Pairing Roast Turkey and Gravy)